1 43000093019 2018-07-23T10:22:00-07:00 These are frequently asked questions as relate to contributing data in LunaDNA 43000143417 false FAQs - Sharing Data (general) 1 2018-07-23T12:15:41-07:00 1 1 2018-07-23T10:33:47-07:00 0 20 LunaDNA currently accepts DNA files from 23andMe, AncestryDNA, MyHeritage and FamilyTree DNA, as well as LunaDNA-generated health surveys. We also accept electronic health records (EHRs) via patient portal integrations. Soon, we will accept additional data types such as whole genome and exome DNA files, RNA, microbiome, fitness/activity trackers, smart devices, medical devices, and many more. The more comprehensive data collected from each member, the more valuable the data is for driving medical breakthroughs. <p>LunaDNA currently accepts DNA files from 23andMe, AncestryDNA, MyHeritage and FamilyTree DNA, as well as LunaDNA-generated health surveys. We also accept electronic health records (EHRs) via patient portal integrations.</p><p>Soon, we will accept additional data types such as whole genome and exome DNA files, RNA, microbiome, fitness/activity trackers, smart devices, medical devices, and many more.</p><p><br></p><p>The more comprehensive data collected from each member, the more valuable the data is for driving medical breakthroughs.</p> 43000143417 556 43000037152 2019-09-18T13:52:41-07:00 43004711812 1 2 0 20 What kind of data can I share in LunaDNA? 2018-07-23T10:33:47-07:00 43004711812 1 2018-09-27T15:39:04-07:00 3 3 Please review our Consent Policy for details on risks associated with sharing your data with LunaDNA for health research. LunaDNA does everything possible to protect against these risks, but it is still important for you to understand them. <p>Please review our <a href="http://support.lunadna.com/support/solutions/articles/43000076335-lunadna-consent" rel="noreferrer noopener">Consent Policy</a> for details on risks associated with sharing your data with LunaDNA for health research. LunaDNA does everything possible to protect against these risks, but it is still important for you to understand them.</p> 43000143417 259 43000076368 2018-10-31T08:57:51-07:00 43004711812 2 2 3 3 What risks are involved in sharing my data with LunaDNA? 2020-11-24T11:28:39-08:00 43004711812 1 2018-07-26T11:41:39-07:00 0 4 Each individual needs a separate account with LunaDNA in order to share health and DNA data.  LunaDNA enables the creation of accounts for minors and wards, which are accounts created and controlled by another member who has guardianship. Please see our Privacy Policy for more details. The member controlling a minor or ward account can share data in those accounts on behalf of the mi Minors: If you are the parent or legal guardian of a minor (someone under the age of 18), you should select "A Minor" from the main registration page (screenshot below) to set up their account. Wards: If you have legal authorization to act on behalf of an adult family member, over the age of 18, you should select "An Adult" from the main registration page (screenshot below) to set up their account. <p>Each individual needs a <strong><em>separate</em></strong> account with LunaDNA in order to share health and DNA data. </p><p><br></p><p>LunaDNA enables the creation of accounts for minors and wards, which are accounts created and controlled by another member who has guardianship. Please see our <span style="color: rgb(44, 130, 201);"><a href="https://support.lunadna.com/en/support/solutions/articles/43000040805">Privacy Policy</a></span> for more details. The member controlling a minor or ward account can share data in those accounts on behalf of the mi</p><p><br></p><p><strong>Minors: </strong>If you are the parent or legal guardian of a minor (someone under the age of 18), you should select "A Minor" from the main registration page (screenshot below) to set up their account.</p><p><img src="https://s3.amazonaws.com/cdn.freshdesk.com/data/helpdesk/attachments/production/43175848841/original/zLGOkdRHCTGG-qsX4Y38lLvIkRr65Luo8A.png?1606241233" style="width: 469px;" class="fr-fic fr-fil fr-dib" data-attachment="[object Object]" data-id="43175848841"></p><p><br></p><p><strong>Wards: </strong>If you have legal authorization to act on behalf of an adult family member, over the age of 18, you should select "An Adult" from the main registration page (screenshot below) to set up their account.</p><p><img src="https://s3.amazonaws.com/cdn.freshdesk.com/data/helpdesk/attachments/production/43175849229/original/nYgUVq2-nSzJ4PROFxkZQyAb6nHhSOcKzw.png?1606241334" style="width: 475px;" class="fr-fic fr-fil fr-dib" data-attachment="[object Object]" data-id="43175849229"><br></p> 43000143417 136 43000038769 2020-11-24T10:12:04-08:00 43004711812 3 2 0 4 Can I upload my family member's data? 2020-11-24T11:28:44-08:00 43004711812 1 2018-09-27T16:07:12-07:00 1 4 We believe your data should be in your control at all times. You control what data you share with LunaDNA for health research. You can delete some or all of your data at any time from your My Data page (https://member.lunadna.com/my-data). From Settings, you can also choose to revoke consent or delete your account which will result in all of your data being deleted as well. Please see the LunaDNA Consent Agreement for more details. From your My Data page, you can also choose to download your own data that you shared with LunaDNA, at any time. This does not remove it from our platform, but provides easy accessibility to you if you need it. <p><strong>We believe your data should be in your control at all times.</strong></p><p><br></p><p>You control what data you share with LunaDNA for health research.</p><p><br></p><p>You can delete some or all of your data at any time from your My Data page (<span style="color: rgb(44, 130, 201);"><a href="https://member.lunadna.com/my-data">https://member.lunadna.com/my-data</a></span>).</p><p>From Settings, you can also choose to revoke consent or delete your account which will result in all of your data being deleted as well. Please see the <span style="color: rgb(44, 130, 201);"><a href="https://support.lunadna.com/en/support/solutions/articles/43000076335">LunaDNA Consent Agreement</a></span> for more details.</p><p><br></p><p>From your My Data page, you can also choose to download your own data that you shared with LunaDNA, at any time. This does not remove it from our platform, but provides easy accessibility to you if you need it.</p> 43000143417 113 43000076389 2020-11-24T10:16:41-08:00 43004711812 4 2 1 4 What type of control do I have over my data? 2020-11-24T11:28:47-08:00 43004711812 1 2018-07-23T10:45:54-07:00 2 2 LunaDNA has surveys on topics including family health history, individual health, medications, environment, lifestyle, and platform-related feedback.  To see a full list of public surveys, please log in to your account and go to the main survey page: https://member.lunadna.com/contribute/survey You may have access to additional surveys based on your participation in ongoing studies in the platform. You can find available studies at: https://member.lunadna.com/contribute/study <p>LunaDNA has surveys on topics including family health history, individual health, medications, environment, lifestyle, and platform-related feedback. </p><p><br></p><p>To see a full list of public surveys, please log in to your account and go to the main survey page:</p><p><span style="color: rgb(44, 130, 201);"><a href="https://member.lunadna.com/contribute/survey">https://member.lunadna.com/contribute/survey</a></span></p><p><br></p><p>You may have access to additional surveys based on your participation in ongoing studies in the platform. You can find available studies at: <span style="color: rgb(44, 130, 201);"><a href="https://member.lunadna.com/contribute/study">https://member.lunadna.com/contribute/study</a></span></p> 43000143417 95 43000037161 2020-11-24T10:05:28-08:00 43004711812 5 2 2 2 What surveys are available on LunaDNA? 2020-11-24T11:28:39-08:00 43004711812 1 2019-09-10T12:22:20-07:00 0 1 Any data you share in LunaDNA is de-identified, encrypted, and added to LunaDNA's secure database to support health discovery.  Your de-identified data is combined (aggregated) with data from other members prior to research use. This helps to ensure that your data is secure and your privacy is protected. For more information, please refer to our Privacy Policy and the LunaDNA Consent you accepted when you became a member. <p>Any data you share in LunaDNA is de-identified, encrypted, and added to LunaDNA's secure database to support health discovery.  Your de-identified data is combined (aggregated) with data from other members prior to research use. This helps to ensure that your data is secure and your privacy is protected.</p><p><br></p><p>For more information, please refer to our <a href="https://support.lunadna.com/support/solutions/articles/43000040805-lunadna-privacy-policy" rel="noreferrer noopener"><span style="color: rgb(26, 188, 156);">Privacy Policy</span></a> and the LunaDNA <a href="https://support.lunadna.com/support/solutions/articles/43000076335-lunadna-consent" rel="noreferrer noopener"><span style="color: rgb(26, 188, 156);">Consent</span></a> you accepted when you became a member.</p> 43000143417 74 43000532632 2019-09-10T12:22:20-07:00 43004711812 6 2 0 1 How is data I share in LunaDNA used for research? 2020-11-24T11:28:54-08:00 43004711812 1 2018-10-05T10:34:25-07:00 0 1 Your date of birth is used for three main things on the LunaDNA platform.  First, your date of birth is used to confirm you as the account owner on your account when you ask us to take any support actions on your behalf. Second, your age is an important criteria for many types of research studies. For example, several diseases have genetic factors associated with the age of onset of disease (ex. Alzheimer's). Researchers may want to focus their studies on an aggregated data set that only includes data from members of a certain age range. Third, your date of birth actually helps us remove personally identifying information from any medical records that you share on our platform. For example, we are able to use your date of birth to set relative values for dates in your medical record associated with specific events (like a blood test, etc.). Those dates in your medical records can be used to re-identify you when paired with other information. We change those dates to relative values associated with your date of birth to increase protections around your privacy. <p>Your date of birth is used for three main things on the LunaDNA platform. </p><p><br></p><p>First, your date of birth is used to confirm you as the account owner on your account when you ask us to take any support actions on your behalf.</p><p><br></p><p>Second, your age is an important criteria for many types of research studies. For example, several diseases have genetic factors associated with the age of onset of disease (ex. Alzheimer's). Researchers may want to focus their studies on an aggregated data set that only includes data from members of a certain age range.</p><p><br></p><p>Third, your date of birth actually helps us remove personally identifying information from any medical records that you share on our platform. For example, we are able to use your date of birth to set relative values for dates in your medical record associated with specific events (like a blood test, etc.). Those dates in your medical records can be used to re-identify you when paired with other information. We change those dates to relative values associated with your date of birth to increase protections around your privacy.</p><p><br></p><p><br></p><p><br></p><p><br></p> 43000143417 53 43000127776 2020-11-24T10:19:51-08:00 43004711812 7 2 0 1 Why do you need to know my date of birth? 2020-11-24T11:28:39-08:00 43004711812 1 2018-10-05T10:40:57-07:00 0 0 Your ethnicity information is important to help ensure that the diversity of people all around the world is represented in research. Your ethnicity may affect and/or inform how you react to drugs, the risk and progression of a disease, and many other factors related to your health. We understand that your ethnicity can be very complex based on your family background. The ethnic categories provided are based on the list defined by the All of Us program for research purposes. We ask for a high level category of how you describe your ethnicity in your member profile. If you are interested, our Demographics Survey asks for additional details on you describe your ethnicity: https://member.lunadna.com/contribute/survey/52. <p>Your ethnicity information is important to help ensure that the diversity of people all around the world is represented in research. Your ethnicity may affect and/or inform how you react to drugs, the risk and progression of a disease, and many other factors related to your health.</p><p><br></p><p>We understand that your ethnicity can be very complex based on your family background. The ethnic categories provided are based on the list defined by the <span style="color: rgb(44, 130, 201);"><a href="https://allofus.nih.gov">All of Us program</a></span> for research purposes.</p><p><br></p><p>We ask for a high level category of how you describe your ethnicity in your member profile. If you are interested, our Demographics Survey asks for additional details on you describe your ethnicity: <br><span style="color: rgb(44, 130, 201);"><a href="https://member.lunadna.com/contribute/survey/52">https://member.lunadna.com/contribute/survey/52.</a></span></p> 43000143417 42 43000127978 2020-11-24T10:35:38-08:00 43004711812 8 2 0 0 Why do you need to know my ethnicity? 2020-11-24T11:28:39-08:00 43004711812